Resources for Family & Caregivers

Questions to ask when choosing a hospice provider – a consumer resource from NAHC and CMA

Anticipatory Grief — Dealing with the emotions of serious illness

Saying Goodbye — Preparing yourself and your family for a final parting

Talking to Your Kids About Your Terminal Illness a Guide for Parents by Amanda Menard, LPN 

Caregiving: A Burden So Heavy, Until It’s Gone by Margaret Renkl, August 8, 2015, The New York Times

Hospice: What is it and when is it for you?, July 26, 2015, CNN,

This is how you feed a dying person, September 10, 2015, Huffington Post

Missouri Hospice & Palliative Care Organization www.missourihospice.org — Information and resources about hospice and palliative care in Missouri.

Hallmark Channel video Value of Hospice — Home and Family

GiveForward www.giveforward.com  — Empower friends and family to send love and financial support to people as they face a medical crisis. Create a page to spread hope and contribute to a loved one’s out-of-pocket medical expenses.

Get Palliative Care www.getpalliativecare.org  — A site to provide consumers with information about palliative care for people with serious illness.

Center for Practical Bioethics www.practicalbioethics.org  — A Kansas City based not-for-profit that raises and responds to ethical issues in health care, offering resources for making end-of-life decisions, help for conversations with your loved ones, and forms to download for health care directives and durable power of attorney.

Cancer Action www.canceractionkc.org  — A Kansas City not-for-profit dedicated to providing comfort and practical assistance for those living with, through and beyond cancer.

Turning Point www.turningpointkc.org  — A center offering comprehensive programmming to address the psychological, social, emotional and physical needs that come with a serious or chronic illness.

Caring Bridge www.caringbridge.org  — Offers protected websites for connecting people when it matters most. Extensive privacy setting.

Mesothelioma www.mesotheliomaguide.com/community/caregivers/ — General information helpful to caregivers.