Many publications are available by request. Some of the most popular are available here online.
Patient Education
The Safe Passage series is a collection of information on topics that are most requested by patients and families. You may view them here and we can provide a supply for you on request.
Safe Passage – Simple Facts About the Control of Pain
Safe Passage – Decisions About Artificial Foods and Fluids
Safe Passage – Restlessness at End of Life
Safe Passage – When Death Nears: Signs and Symptoms
Safe Passage – Talking to Children and Teens About Illness or Death
Safe Passage – Understanding Grief
Online Articles & Studies
A Deeper Understanding of Palliative Care, Georgetown University School of Nursing, November 14, 2017
Good Palliative Care, Bad Palliative Care: A Tale Of 2 Doctors, WBUR Boston, July 14, 2015,
Never Only Opiods: The Imperative for Early Integration of Non-Pharmacological Approaches and Practitioners in the Treatment of Patients with Pain, Center for Practical Bioethics, Fall 2014
NEJM, August 2010, Early palliative care for patients with metastatic non-small-cell lung cancer
Assistance with Difficult Conversations
Cancer World, May-June 2014, Living with Cancer or Dying of Cancer?
Forbes, Common Myths of Hospice Care Debunked, February 25, 2015
The Washington Post, A Doctor Discovers an Important Question Patients Should Be Asked, March 2015
NPR, Knowing How Doctors Die Can Change End-Of-Life Discussions, July 6, 2015
Websites
Pallimed: A Hospice & Palliative Medicine Blog pallimed.org
American Academy of Hospice and Palliative Medicine aahpm.org
Center for Practical Bioethics practicalbioethics.org
Center to Advance Palliative Care capc.org
Missouri Hospice & Palliative Care Association mohospice.org
Recommended Reading
Being Mortal: Medicine and What Matters in the End by Atul Gwande
The Four Things That Matter Most: A Book About Living by Ira Byock, M.D.
Unplugged: Reclaiming Our Right to Die in America by Bill Colby
Long Goodbye: The Deaths of Nancy Cruzan by Bill Colby
Handbook for Mortals: Guidance for People Facing Serious Illness by Joanne Lynn, Joan Harrold and The Center to Improve Care of the Dying
