Publications and Links

Many publications are available by request. Some of the most popular are available here online.

Patient Education

The Safe Passage series is a collection of information on topics that are most requested by patients and families. You may view them here and we can provide a supply for you on request.

Safe Passage – Simple Facts About the Control of Pain

Safe Passage – Decisions About Artificial Foods and Fluids

Safe Passage – Restlessness at End of Life

Safe Passage – When Death Nears: Signs and Symptoms

Safe Passage – Talking to Children and Teens About Illness or Death

Safe Passage – Understanding Grief

Online Articles & Studies

A Deeper Understanding of Palliative Care, Georgetown University School of Nursing, November 14, 2017

Good Palliative Care, Bad Palliative Care: A Tale Of 2 Doctors, WBUR Boston, 

Never Only Opiods: The Imperative for Early Integration of Non-Pharmacological Approaches and Practitioners in the Treatment of Patients with Pain, Center for Practical Bioethics,  Fall 2014

NEJM, August 2010, Early palliative care for patients with metastatic non-small-cell lung cancer

Assistance with Difficult Conversations

Cancer World, May-June 2014, Living with Cancer or Dying of Cancer?

Forbes, Common Myths of Hospice Care Debunked, February 25, 2015

The Washington Post, A Doctor Discovers an Important Question Patients Should Be Asked, March 2015

NPR, Knowing How Doctors Die Can Change End-Of-Life Discussions, July 6, 2015

Websites

Pallimed: A Hospice & Palliative Medicine Blog pallimed.org

American Academy of Hospice and Palliative Medicine aahpm.org

Center for Practical Bioethics practicalbioethics.org

Center to Advance Palliative Care capc.org

Missouri Hospice & Palliative Care Association mohospice.org

Recommended Reading

Being Mortal:  Medicine and What Matters in the End by Atul Gwande

The Four Things That Matter Most: A Book About Living  by Ira Byock, M.D.

Unplugged: Reclaiming Our Right to Die in America by Bill Colby

Long Goodbye: The Deaths of Nancy Cruzan by Bill Colby

Handbook for Mortals: Guidance for People Facing Serious Illness by Joanne Lynn, Joan Harrold and The Center to Improve Care of the Dying