Blog

Mustache Month for Carousel is a FUN-raiser for a very serious cause

Carousel Pediatric Care at Kansas City HospiceLast year, we set out to design a fundraising campaign for what you might consider our most serious of causes. And, we came up with Mustache Month for Carousel. Mustache Month for Carousel is a FUN-raiser for a very serious cause. We took our inspiration from the families served by our Carousel Team.

Families who are affected by the serious illness of a child may be some of the most inspiring people you’ll ever meet! Their goal each day is find ways to savor the moments of childhood — normal everyday moments of love, togetherness and laughter. The Carousel Team stands ready to help them emotionally and spiritually, as well as with their medical concerns.

Carousel Pediatric Care is a very serious group of dedicated hospice professionals who do their best each day to put a smile on the faces of the families in their care. You might think that this remarkable group of nurses, aides, physicians, social workers, therapists and physicians would come home each day exhausted and emotionally shattered.

Sure, they are tired, but they find such fulfillment and joy from working with the young ones and their families. Their very serious job is to help each child have the best day possible and for the entire family to find peace, comfort and joy in being together.

So, a light-hearted FUN-raiser for a very serious cause was born.

LEARN MORE ABOUT MUSTACHE MONTH FOR CAROUSEL

The vast majority of Hospice Care is provided to adults. However, donor support also allows Kansas City Hospice to serve as the only hospice provider in the Kansas City area with a dedicated team of compassionate, expert caregivers who are fully focused on the unique needs of children and their families. 

Here is the story of just one of those families. A story made possible by the generosity of our community.

The Stults Family

Coming to hospice wasn’t an easy decision for Michael and Jennifer Stults. They were parents of two little ones who were suffering from a genetic disorder called Niemann-Pick Disease Type C. It’s a disease so rare only a few hundred cases exist around the world. Michael and Jennifer had known that day would arrive. Yet they still held out hope that things could be different for their family.

Their spiritual faith and love for one another saw them through a long, heartbreaking journey. They watched their smiling, playful young boys suffer and eventually succumb to the deadly disorder. At just 9½, after years of medical complications and a few close calls, Michael and Jennifer’s eldest son Brisan died suddenly.

Laughing and fooling around with his younger siblings just hours earlier, it was almost unbelievable that Brisan could be gone so quickly. While medical care has advanced significantly in the last few decades, the unfortunate fact is there are still many diseases which prove fatal nearly 100% of the time, this being one of them.

Kansas City Hospice and Carousel Pediatric CareCompassionate Care

As Michael noted, “There was a lot of compassion involved. There was just this ‘vibe’ about the folks who came to our home from Kansas City Hospice. They really cared, and you could see it in every interaction.”

Just ten months later, Kansas City Hospice was able to be there for the Stults while they were not only grieving the loss of Brisan, but preparing for the loss of their second born, Parker. “We weren’t just grieving that we were losing Parker” said Jennifer. “We were also grieving that we had just lost a child.”

Parker, also just 9 years old, succumbed to the disease, joining his “partner in crime.” He left behind devastated parents and little Duncan. Duncan was the youngest brother and the only sibling to escape this deadly disease. No longer rounding out a trio of wide smiles and silly little-boy jokes, Duncan now held only the precious memories of his two big brothers and the joy Brisan and Parker brought to their family and the world around them.

Yet in true Stults fashion, the family shared thanks for their caregivers and donors who enable us to carry out the mission of Kansas City Hospice each and every day. “It allowed us to spend more time with our kids who were sick, rather than playing doctor. The biggest benefit was having the nurse on call 24 hours a day,” continued Jennifer. “But the other services we had access to were amazing as well. We had the music therapist who came out to work not only with the boys, but with Duncan. The social worker was available to answer questions.”

Even after their loss, Kansas City Hospice bereavement services, including Solace House, were there to help the Stults family navigate the journey of grief. “It was a place where we could be vulnerable. We could grieve with other people who had been there, done that,” Jennifer noted.

Commitment to Kansas City

Bringing expert, compassionate hospice and palliative care to the community has been the mission of Kansas City Hospice since our founding 40 years ago. As a not-for-profit, we remain true to that mission, offering unparalleled care to all in need regardless of their resources.

Families who are facing the unbearable need the dedicated Carousel Team to get them through to the other side. Together, we can stand side-by-side with them as they take the most difficult journey imaginable.

Your financial support today means that when families like these need us, we will be there. 

From the bottom of our hearts, we thank you for your continued generosity and care for families in our community. We can’t do it without you!

LEARN MORE ABOUT MUSTACHE MONTH FOR CAROUSEL

#M4Carousel

Or, you can give now…

If Mustache Month is not your cup of tea, you can still donate. Just use this form! We’ll make sure children and teens in Kansas City get the best care ever!

Kansas City HospiceCarousel Pediatric Care at Kansas City Hospice is the only hospice team in the region dedicated to the unique needs of children and their families.

  • Besides medical care, families receive emotional and spiritual support.
  • Art, music and play therapy help both patients and siblings cope.
  • Last year Carousel cared for more than 100 children requiring palliative or hospice care.
  • More than 85 kids and family members attended one of two summer grief camps.

 


Leave a Reply

Our Programs

There's a long list of hospices in Kansas City, but there's only one Kansas City Hospice. Our programs provide comprehensive expert care for all ages at all stages of serious illness.

Hospice Care

When the focus shifts to comfort instead of treatment, care comes to your home or nursing facility with a plan tailored to your needs, including emotional and spiritual support for the whole family.

Read More

Hospice Care

Palliative Home Health Care

When complex needs benefit from a team approach, supportive home care brings the care you need, with 24/7 nurse support for pain, stress and symptoms due to serious illness.

Read More

Palliative Home Health Care

Advanced Illness Support

Beginning as early as diagnosis and at any stage of serious illness, our nurse practitioners make home visits as needed to help coordinate your care and provide expert pain and symptom management.

Read More

Advanced Illness Support
Hospice House

Hospice House

When symptoms cannot be easily managed at home, two hospice houses provide 24/7 expert care in comfortable home-line settings where family members can be relieved of caregiving duties to focus on loved ones.

Read More

Carousel Pediatric Care

Carousel provides palliative and hospice care for perinatal and for babies through young adults with a dedicated team of pediatric nurses, social workers, chaplains and other specialists.

Read More

Carousel Pediatric Care
Solace House

Solace House

Our center for grief and healing supports individuals and families who have been impacted by the death of a loved one, whether anticipated, or sudden and unexpected. We provide opportunities to share, listen, learn and heal with peer group support from age 3 through adult.

Read More

Site Created & Maintained by KC Web Specialists, LLC